Thursday, August 8, 2013

wearing

i love the Pleated Poppy What I wore Wednesday posts. 
Love them.  
Every week I think- I'll take some pictures this week! I'll post! I'll link up :-)
Pictures of myself usually wind up making me feel like this


a little bit crazy :-) 

I start with good intentions... and a toy filled room

and an adorable daughter:-)



 and it quickly escalates to this
:-)moma momma mooooooooommmmmaaaaaa

Every day I wear a black shirt of some kind and a dark pair of trousers or skirt.  work.  

most days after work I look something like this


blurry and sweaty and what not- Love the Old Navy workout gear

This week so far I've done Zumba once, P90X once, butts and guts once, and taken a walk- not BAD at ALL :-) 

life has been full of sweet- and i'm focused again on finding it! here are a few of my favorites from ye olde Pinterest -


yes- my Abraham obsession is showing! 







and a gentle reminder to my self-
  

xo 








Monday, August 5, 2013

go on girl!

HA-Ppy Monday :-)
or whatever <---- don't get surly on me just because I have a vanilla chai latte sitting here at my elbow while I type, and it makes me all giddy and smiley and positively positive. ahhhhh

We are just a few days home from our annual Michigan trip ( crazy grammar, going with it).
I miss the beach.  



I miss the wake up, lazy breakfast, beach.... beach.  
Bo- non stop!!! he chased seagulls, built trenches,  shot his bow and arrow at fish/weeds/sandpiles... swam, swam, swam!!







Baby girl- all about the water, the dunes, the BIRDS!!! She tried her best to fill that lake back up with sand, one scoop at a time :-) 


Big Boy in his happy place.  Water for days- pouring and scooping, snack, repeat.  sugar.  



 


now don't be thinking it was a warm tropical vacation... it was COLD!!! really cold.  So yeah, sometimes the husband and I wore our sweats... while our kids frolicked in the water- OY!! they went down fully clothed, there just was NO way on God's green earth that they were staying out of the water!!   Polar Bear Club members in the making :-)





We took advantage of the cooler weather and roasted s'mores in our fireplace most every night. and we ate a LOT of ice cream.  I think our final count was 15 different flavors that we had tried throughout the trip- NOM!! My favorite was possibly utter-nutsense- a rich dark chocolate with chocolate covered pecans.  Or maybe it was CowCoNut!! Coconut ice cream with pecan pieces.... or maybe the aMOOse-mint- mint ice cream with chocolate covered mini reeces cups!! oh baby! 


Always good to go, always good to come home


(it's a periscope :-))

swinging machine! 

so happy to be back amongst her plants.  


xo





Sunday, August 4, 2013

here

 here and gone.  
most of the time, whether I'm blogging or not, we roll from day to day- Ups and downs all part of the flow.  
Focusing on the positive. 
 Every once in a while this life seems far too big, far too overwhelming, far too full of GRIEF to attempt to sit and type happily away- la dah di, la dah dum.  Unless you lived inside my head (or, bless his heart, you are the husband who has no choice in the matter and has to hear it ALL) , I don't imagine you'd ever know it. I work pretty hard at keeping upbeat and happy.  a smile on my face and a soft, easy voice.  

 so.  
 so I go MIA from what I can... real life never, cyber life yes indeed! 
Then, when I'm ready, when I can stop 'just surviving' and move forward... I come  back to the blog.  

I'm happy to say I kept exercising :-)  and eating ice cream :-) and that we raised a BOAT LOAD of Fragile X Awareness!

over 250 people that we knew wore green on July 22nd in Honor and Support of Abraham !!!! 250!!! 2 different High school football teams and their coaching staffs, ER Nurses and support personal,  Students and Teachers at the elementary school, Nursing Students, Families ALL OVER the WORLD!!! it was amazing :-) 


my Zumba group! 

a collage that my sweet friend put together of the last 30 that she saw :-) 

my brother :-)  someday I'll squat like that... not with that much weight, for pete's sake, but like... i'll squat :-) 


the husband and his football team- see Bodie?? 

our family :-)  

If I had to summarize FX in just a few short phrases, I think I'd like you to know that it's caused by an unstable repeat on the X Chromosome of the DNA building blocks CGG.  This shuts of production of the FMR1 protein... and this affects EVERYTHING- gross motor, fine motor, speech and language, cognition, sensory processing, connective tissues, anxiety regulation... EVERYTHING.  Some people are really affected.  Some are not.  My Abe is really, truly, seriously affected.  No words- no consonants.  high motor- high anxiety. moving, flapping, rocking, twirling.  FX is the leading known genetic cause of autism.  FX is genetic... I'm a carrier.  I have a pre-mutation of this unstable repeat on my X chromosome, and in each generation it expands.  I have 89 repeats- Abe has over 200- anything over 200 repeats of the CGG repeats without  *** new information!!!*** AGG repeats leads to  Fragile X.  I have 2 X chromosomes- one affected, one not.  Abe received my affected X, Bodie received my unaffected X.  No one in my family knew about FX until we received Abe's diagnosis.  

crazy business.  

so, lovey lovies.  pardon the disappearance- it'll most likely happen again, but that's ok because
 ---->

thankgoodness :-) 
xo 


linking up with Molly  for Funday Monday